For more than ten years, the Thalassemia and Blood Disorders Foundation, a 68/2019 nonprofit organization, has been a strong and supportive partner for families living with thalassemia. Although now national in scope, TBDF began on a local level – a fact reflected in the continuing importance of our local chapters.
In 2012, Ravi Kumar Kasuvu was a young Indian businessman working and living in Kadapa, Andhra Pradesh when two of his young children were diagnosed with a rare blood disease, Thalassemia Major.
Ravi Kumar Kasuvu began organizing neighborhood blood drives to make sure that his children and others like them would have the precious blood they needed to survive. Even though these blood drives were successful, Ravi Kumar realized that more was needed.
One Day, Ravi Kumar and the parents of other Thalassemia Major patients met in the ward of GGH-RIMS Hospital Kadapa to discuss what they could do to help their children and let the state know about this rare disease. From that meeting, the seeds of the Thalassemia and Blood Disorders Foundation were sown.
Since that day, TBDF has grown into a district and state force with an extraordinary record of accomplishments. TBDF established the first Fellowship Program for thalassemia research and has become a strong voice in Kadapa for thalassemia patients and their families.
What began as the story of one man’s family is today the story of many families working together toward a common goal – better treatments and a cure for a disease which threatens their most precious resource – their children.